AccScience Publishing / HPR / Online First / DOI: 10.36922/HPR026340207
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RESEARCH ARTICLE

Maternal meaning-making under uncertainty in Xiaohongshu autism-related narratives

Pu Luo1† ,  Wenyu Liu1†*
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1 School of Foreign Languages, Dalian University of Technology, Dalian, Liaoning , China
†These authors contributed equally to this work.
Received: 21 August 2026 | Revised: 21 October 2026 | Accepted: 22 October 2026 | Published online: 2 November 2026
© 2026 by the Author(s). This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution -Noncommercial 4.0 International License (CC-by the license) ( https://creativecommons.org/licenses/by-nc/4.0/ )
Abstract

Background: Parenting an autistic child can involve uncertainty about educational pathways, family responsibilities, and personal continuity.

Objective: This study examines how self-identified Chinese mothers of autistic children negotiate these concerns through serial Xiaohongshu narratives and associated comments.

Methods: This interpretive qualitative analysis combined meaning-making theory with narrative and positioning perspectives. The corpus comprised 416 posts from seven maternal accounts and 6,826 first-level comments collected manually from Xiaohongshu. The posts and comments were published between March 2024 and December 2025. Reflexive thematic interpretation considered narrative episodes, within-account sequences, and responses attached to posts.

Results: Seven connected themes concerned recurrent disruption of developmental futures; love moralized as debt and intensive action; oscillation between collapse, hope, and provisional acceptance; redefinition of progress through relational micro-events; peer recognition and experiential expertise; a contested comment ecology that validated, disciplined, stigmatized, or commercialized mothers; and reclamation of a self beyond caregiving.

Conclusion: Meaning-making emerged as a continuing negotiation of anticipated futures, maternal responsibility, and personal identity, shaped by relationships within and beyond the family. These findings may inform further research into caregiver support, the moral expectations associated with care, and the quality of guidance circulating in online communities.

Keywords
Autism
Caregiving
Maternal identity
Meaning-making
Xiaohongshu
Funding
None.
Conflict of interest
No potential conflicts of interest were reported by the authors.
References
  1. Hayes SA, Watson SL. The impact of parenting stress: a meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. J Autism Dev Disord. 2013;43(3):629-642. doi: 10.1007/s10803-012-1604-y
  2. Yorke I, White P, Weston A, Rafla M, Charman T, Simonoff E. The association between emotional and behavioral problems in children with autism spectrum disorder and psychological distress in their parents: a systematic review and meta-analysis. J Autism Dev Disord. 2018;48(10):3393-3415. doi: 10.1007/s10803-018-3605-y
  3. Schnabel A, Youssef GJ, Hallford DJ, et al. Psychopathology in parents of children with autism spectrum disorder: a systematic review and meta-analysis of prevalence. Autism. 2020;24(1):26-40. doi: 10.1177/1362361319844636
  4. Brennan J, Ward OF, Tomeny TS, Davis TE III. A systematic review of parental self-efficacy in parents of autistic children. Clin Child Fam Psychol Rev. 2024;27(3):878-905. doi: 10.1007/s10567-024-00495-2
  5. Dai Y, Chen M, Deng T, et al. The importance of parenting self-efficacy and social support for family quality of life in children newly diagnosed with autism spectrum disorder: a one-year follow-up study. Autism Res. 2024;17(1):148-161. doi: 10.1002/aur.3061
  6. Higgins L, Mannion A, Chen JL, Leader G. Adaptation of parents raising a child with ASD: the role of positive perceptions, coping, self-efficacy, and social support. J Autism Dev Disord. 2023;53(3):1224-1242. doi: 10.1007/s10803-022-05537-8
  7. Li F, Xu M, Wu D, et al. From child social impairment to parenting stress in mothers of children with ASD: the role of parental self-efficacy and social support. Front Psychiatry. 2022;13:1005748. doi: 10.3389/fpsyt.2022.1005748
  8. Stephenson KG, Fenning RM, Macklin EA, et al. Child behavior problems and parenting stress in underserved families of children with ASD: investigation of family resources and parenting self-efficacy. J Autism Dev Disord. 2023;53(10):3787-3798. doi: 10.1007/s10803-022-05681-1
  9. Wang Z, Wang L, Chang S, Wang H. The mediating effect of parenting stress on the relationship between social support and quality of life in parents of children with autistic spectrum disorder: a meta-analytic structural equation modeling. Front Psychiatry. 2022;13:713620. doi: 10.3389/fpsyt.2022.713620
  10. Han Z, Zhong H, Hansen P. The complex information needs of Chinese parents of children with autism spectrum disorder. Online Inf Rev. 2024;48(3):601-618. doi: 10.1108/OIR-04-2022-0247
  11. Huang S, Li X, Dong D. Negotiating work and care in Chinese families of children with autism: reframing mothers' narratives through a social-relational lens. Disabil Soc. 2024;39(11):2835-2856. doi: 10.1080/09687599.2023.2227330
  12. DePape AM, Lindsay S. Parents' experiences of caring for a child with autism spectrum disorder. Qual Health Res. 2015;25(4):569-583. doi: 10.1177/1049732314552455
  13. Fan X, Ko KS. Chinese caregivers' experiences parenting children with autism spectrum disorder: a descriptive qualitative study. Front Psychiatry. 2025;16:1514948. doi: 10.3389/fpsyt.2025.1514948
  14. Gao X, Drani S. Social support experiences in parents of children with ASD: a qualitative systematic review. SAGE Open. 2025;15(2). doi: 10.1177/21582440251336174
  15. Goh JX, Aishworiya R, Ho RCM, Wang W, He HG. A qualitative study exploring experiences and support needs of parents of children with autism spectrum disorder in Singapore. J Clin Nurs. 2021;30(21-22):3268-3280. doi: 10.1111/jocn.15836
  16. Mutschler Collins I, Durrer M, Deraita J, Meyer AH. Parents' perspectives regarding support for raising a child on the autism spectrum in Switzerland: a mixed-methods study. J Child Fam Stud. 2025;34(7):1952-1971. doi: 10.1007/s10826-025-03108-w
  17. Shorey S, Ng ED, Haugan G, Law E. The parenting experiences and needs of Asian primary caregivers of children with autism: a meta-synthesis. Autism. 2020;24(3):591-604. doi: 10.1177/1362361319886513
  18. Trew S. Our challenges, our solutions: the impact of autism on families. J Autism Dev Disord. Published online September 9, 2025. doi: 10.1007/s10803-025-07034-0
  19. Zhou J, Ning Y. Exploring motherhood dilemmas and coping strategies among mothers of children with autism: a qualitative study in mainland China. Front Psychiatry. 2025;16:1569928. doi: 10.3389/fpsyt.2025.1569928
  20. Bottema-Beutel K, Kapp SK, Lester JN, Sasson NJ, Hand BN. Avoiding ableist language: suggestions for autism researchers. Autism Adulthood. 2021;3(1):18-29. doi: 10.1089/aut.2020.0014
  21. Dwyer P. The neurodiversity approach(es): what are they and what do they mean for researchers? Hum Dev. 2022;66(2):73-92. doi: 10.1159/000523723
  22. Kenny L, Hattersley C, Molins B, Buckley C, Povey C, Pellicano E. Which terms should be used to describe autism? Perspectives from the UK autism community. Autism. 2016;20(4):442-462. doi: 10.1177/1362361315588200
  23. Park CL. Making sense of the meaning literature: an integrative review of meaning making and its effects on adjustment to stressful life events. Psychol Bull. 2010;136(2):257-301. doi: 10.1037/a0018301
  24. McAdams DP, McLean KC. Narrative identity. Curr Dir Psychol Sci. 2013;22(3):233-238. doi: 10.1177/0963721413475622
  25. Bamberg M, Georgakopoulou A. Small stories as a new perspective in narrative and identity analysis. Text Talk. 2008;28(3):377-396. doi: 10.1515/TEXT.2008.018
  26. Hermans HJM. The dialogical self: toward a theory of personal and cultural positioning. Cult Psychol. 2001;7(3):243-281. doi: 10.1177/1354067X0173001
  27. Naslund JA, Aschbrenner KA, Marsch LA, Bartels SJ. The future of mental health care: peer-to-peer support and social media. Epidemiol Psychiatr Sci. 2016;25(2):113-122. doi: 10.1017/S2045796015001067
  28. Wong TSM, Shorey S. Experiences of peer support amongst parents of children with neurodevelopmental disorders: a qualitative systematic review. J Pediatr Nurs. 2022;67:e92-e99. doi: 10.1016/j.pedn.2022.09.004
  29. Ziebland S, Wyke S. Health and illness in a connected world: how might sharing experiences on the internet affect people's health? Milbank Q. 2012;90(2):219-249. doi: 10.1111/j.1468-0009.2012.00662.x
  30. Moorhead SA, Hazlett DE, Harrison L, Carroll JK, Irwin A, Hoving C. A new dimension of health care: systematic review of the uses, benefits, and limitations of social media for health communication. J Med Internet Res. 2013;15(4):e85. doi: 10.2196/jmir.1933
  31. Zhou Q, Lei Y, Du H, Tao Y. Public concerns and attitudes towards autism on Chinese social media based on K-means algorithm. Sci Rep. 2023;13(1):15173. doi: 10.1038/s41598-023-42396-4
  32. Ng CSM, Ng SSL. A qualitative study on the experience of stigma for Chinese parents of children with autism spectrum disorder. Sci Rep. 2022;12(1):19550. doi: 10.1038/s41598-022-23978-0
  33. Gao X, Lu X, Drani S. Growing in adversity: a narrative study of resilience generation in Chinese families of children with ASD. Behav Sci (Basel). 2023;13(2):136. doi: 10.3390/bs13020136
  34. Liu Y, Fisher KR. Struggle for recognition, rights, and redistribution: understanding the identity of parents of children with autism spectrum disorder in China. Front Psychol. 2023;13:981986. doi: 10.3389/fpsyg.2022.981986
  35. Braun V, Clarke V. One size fits all? What counts as quality practice in (reflexive) thematic analysis? Qual Res Psychol. 2021;18(3):328-352. doi: 10.1080/14780887.2020.1769238
  36. Braun V, Clarke V. Conceptual and design thinking for thematic analysis. Qual Psychol. 2022;9(1):3-26. doi: 10.1037/qup0000196
  37. Malterud K, Siersma VD, Guassora AD. Sample size in qualitative interview studies: guided by information power. Qual Health Res. 2016;26(13):1753-1760. doi: 10.1177/1049732315617444
  38. Eysenbach G, Till JE. Ethical issues in qualitative research on internet communities. BMJ. 2001;323(7321):1103-1105. doi: 10.1136/bmj.323.7321.1103
  39. Fiesler C, Proferes N. "Participant" perceptions of Twitter research ethics. Soc Media Soc. 2018;4(1). doi: 10.1177/2056305118763366
  40. Williams ML, Burnap P, Sloan L. Towards an ethical framework for publishing Twitter data in social research: taking into account users' views, online context and algorithmic estimation. Sociology. 2017;51(6):1149-1168. doi: 10.1177/0038038517708140
  41. Pardo-Salamanca A, Rosa-Martínez E, Gómez S, Santamarina-Siurana C, Berenguer C. Parenting stress in autistic and ADHD children: implications of social support and child characteristics. J Autism Dev Disord. 2025;55(7):2284-2293. doi: 10.1007/s10803-024-06377-4
  42. Smith-Young J, Chafe R, Audas R, Gustafson DL. "I know how to advocate": parents' experiences in advocating for children and youth diagnosed with autism spectrum disorder. Health Serv Insights. 2022;15. doi: 10.1177/11786329221078803
  43. Feng Y, Zhou X, Qin X, et al. Parental self-efficacy and family quality of life in parents of children with autism spectrum disorder in China: the possible mediating role of social support. J Pediatr Nurs. 2022;63:159-167. doi: 10.1016/j.pedn.2021.10.014
  44. Yan T, Hou Y, Deng M. Direct, indirect, and buffering effect of social support on parental involvement among Chinese parents of children with autism spectrum disorders. J Autism Dev Disord. 2022;52(7):2911-2923. doi: 10.1007/s10803-021-05170-x
  45. Khusaifan SJ, El Keshky MES. Social support as a protective factor for the well-being of parents of children with autism in Saudi Arabia. J Pediatr Nurs. 2021;58:e1-e7. doi: 10.1016/j.pedn.2020.11.014
  46. Gray DE. "Everybody just freezes. Everybody is just embarrassed": felt and enacted stigma among parents of children with high functioning autism. Sociol Health Illn. 2002;24(6):734-749. doi: 10.1111/1467-9566.00316
  47. Kinnear SH, Link BG, Ballan MS, Fischbach RL. Understanding the experience of stigma for parents of children with autism spectrum disorder and the role stigma plays in families' lives. J Autism Dev Disord. 2016;46(3):942-953. doi: 10.1007/s10803-015-2637-9
  48. Recio P, Molero F, García-Ael C, Pérez-Garín D. Perceived discrimination and self-esteem among family caregivers of children with autism spectrum disorders (ASD) and children with intellectual disabilities (ID) in Spain: the mediational role of affiliate stigma and social support. Res Dev Disabil. 2020;105:103737. doi: 10.1016/j.ridd.2020.103737
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Health Psychology Research, Electronic ISSN: 2420-8124 Published by AccScience Publishing